The BOARD
Who We Are
Shawn Ramagos
Chairman of the Board
Mr. Ramagos serves as Chairman of the Board for Own MG and handles the media and marketing inquiries. He has a 20 year career in entertainment and media, being inducted into the Marquis Who’s Who publication as an industry leader in his field. He has operated several nonprofits in the past and has a strong background in nonprofit operations. As a patient of MG himself, he is thrilled to be involved in this organization, especially since it assists patients to understand their disease enabling them to become better advocates for their own health.
Stephanie Madole
Vice Chair of the board
Stephanie is a passionate advocate for rare diseases, driven by her personal experience
navigating the medical world to find answers for her her two young daughters who have myasthenia gravis and relapsing polychondritis, a rare combination of autoimmune and auto-inflammatory diseases. Their struggles have inspired her to create this nonprofit organization that provides education and support to patients and families
dealing with rare diseases. This may have started as a small profound mission for Stephanie, helping one family at a time. Now, through advocacy and awareness she will support, implement , and help fund medical research for rare diseases.
Stephanie is unapologetically real in her dedication to support patients and families, drive funding and further research is unprecedented. She is a strong leader making her a dynamic advocate for rare disease. A coffee lover, avid reader, and sports fanatic, she resides in Northern California with her husband Dustin and two young daughters Elizabeth (9) and Charlotte (6).
Christina Ramirez
Treasurer
Choosing nursing as her career, patient advocacy and providing education for patients and families has been imbedded in her nature and life’s work for many years. After being diagnosed with Myasthenia Gravis (MG) and no longer being able to work in the ICU, Christina feels she was extraordinarily blessed to find a renewed sense of purpose and fulfillment within the MG community as the persistent theme and need for advocacy and education became so apparent. As a wife and mother of two children, Christina understands trying to find the balance between chronic illness and the various roles in life and the human need to be heard and understood. She strives to improve the quality of life for those struggling with chronic illness, especially those with MG and other rare diseases.
Rose Cauley
Secretary
Rose Cauley is a registered nurse for a level 1 trauma center located in Tucson, Arizona. Rose has over 20 years of experience in the medical field. Her areas of expertise include emergency medicine, trauma, and critical care. Rose has a passion for patient advocacy and has spent most of her career working with underserved populations. In addition to nursing, she is also a gifted educator with over 15 years of experience teaching the next generation of medical professionals. Rose is honored to be a part of Own MG where she can focus on her passions for patient advocacy and education.
